So sorry. Similar story here--healthy/normal 2 YO overnight PANS onset post Hep A vax. Searched for years--told couldn't be vax 'it's one of the good ones'. Didn't want to believe it myself bc always was pro-vax. Finally got dx and great MD (w/ 2 pans kids herself) started talking about aluminum adjuvant and neurotoxicity. Many months of…
So sorry. Similar story here--healthy/normal 2 YO overnight PANS onset post Hep A vax. Searched for years--told couldn't be vax 'it's one of the good ones'. Didn't want to believe it myself bc always was pro-vax. Finally got dx and great MD (w/ 2 pans kids herself) started talking about aluminum adjuvant and neurotoxicity. Many months of research into schedule later I was horrified by what I learned. Pls Vinay if you are reading: all the so-called 'debunking' of MMR did not use a true placebo--neurotoxic aluminum and excipients were included in the 'control'! This is absurd to anyone familiar with the pharmacokinetics of injected aluminum (preferential affinity for fatty tissue--brain and liver--so immune system attacks brain in an attempt to remove it, causing neuroinflammation. This is among other harms of injected aluminum)--esp in the cumulative doses injected to infants or to anyone with metabolic detox impairment (so many of us these days.) The massive increase in total vaccines since 1986 is also hugely questionable. As for us, after years of trying every abx and supplement under the sun (with definite improvement but not sustained) we finally found healing with homeopathy. I was reluctant (too woo-woo)--boy was I wrong. I only wish we had done it the day he was diagnosed. Conventional medicine generally only suppresses symptoms. We must have a reckoning about the exploding vaccine schedule and what we are exposing our children too and it has to start with acknowledging that the so-called 'research debunking the harms' is massively insufficient and that we must have independent, placebo-controlled trials and must look at the schedule in totality.
We're wishing we could get our 15yr old on board with homeopathy (this cured my migraines) - But he's full-on refusal mode with this flare- we can't get him to believe anything will work. We're at a very dark doorstep with this. We know PANS kids struggle with this can’t-do-the-biology-fix-’cause-brain-on-fire, but it's an absolute nightmare living through it nonetheless. Some days I'm so exhausted that I can't even raise the curiosity to explore how little curiosity people seem to have about this….
So sorry. Similar story here--healthy/normal 2 YO overnight PANS onset post Hep A vax. Searched for years--told couldn't be vax 'it's one of the good ones'. Didn't want to believe it myself bc always was pro-vax. Finally got dx and great MD (w/ 2 pans kids herself) started talking about aluminum adjuvant and neurotoxicity. Many months of research into schedule later I was horrified by what I learned. Pls Vinay if you are reading: all the so-called 'debunking' of MMR did not use a true placebo--neurotoxic aluminum and excipients were included in the 'control'! This is absurd to anyone familiar with the pharmacokinetics of injected aluminum (preferential affinity for fatty tissue--brain and liver--so immune system attacks brain in an attempt to remove it, causing neuroinflammation. This is among other harms of injected aluminum)--esp in the cumulative doses injected to infants or to anyone with metabolic detox impairment (so many of us these days.) The massive increase in total vaccines since 1986 is also hugely questionable. As for us, after years of trying every abx and supplement under the sun (with definite improvement but not sustained) we finally found healing with homeopathy. I was reluctant (too woo-woo)--boy was I wrong. I only wish we had done it the day he was diagnosed. Conventional medicine generally only suppresses symptoms. We must have a reckoning about the exploding vaccine schedule and what we are exposing our children too and it has to start with acknowledging that the so-called 'research debunking the harms' is massively insufficient and that we must have independent, placebo-controlled trials and must look at the schedule in totality.
We're wishing we could get our 15yr old on board with homeopathy (this cured my migraines) - But he's full-on refusal mode with this flare- we can't get him to believe anything will work. We're at a very dark doorstep with this. We know PANS kids struggle with this can’t-do-the-biology-fix-’cause-brain-on-fire, but it's an absolute nightmare living through it nonetheless. Some days I'm so exhausted that I can't even raise the curiosity to explore how little curiosity people seem to have about this….